Helpful Links
The following are links to other organizations that might provide further support and resources. The PND Association assumes no liability for any information contained in any linked site.
Assistive Technology
Abledata National Assistive Technology Database
www.abledata.com
Alliance for Technology Access
www.ataccess.org
Education
Office of Special Ed Programs (OSEP)
www.ed.gov/offices/OSERS/OSEP/index.html
A Guide to the IEP
www.ed.gov/offices/OSERS/OSEP/...
Special Education Resources on the Internet (SERI)
www.seriweb.com
The Special Ed Advocate
www.wrightslaw.com
Band-aides and Blackboards
http://funrsc.fairfield.edu/~jfleitas/contents.html
Financial Entitlements/ Insurance
US Department of Health and Human Services Children's Health Insurance Program
www.insurekidsnow.gov/
SSA Benefits for Children with Disabilities
http://www.ssa.gov/pubs/10026.html
Family Voices
www.familyvoices.org
Medicaid Waivers (Katie Beckett)
www.familyvoices.org/ma-kbw.html
Evaluating Managed Care Plans for children with Special Health Needs: A Purchasers Tool
www.ichp.edu/managed/materials/purchaser/
Obtaining Quality Managed Care for Children with Disabilities or Chronic Illnesses: A Resource and Research Guide
http://mchneighborhood.ichp.edu...
Disability/ Chronic Illness
The National Information Center for Children and Youth with Disabilities
www.nichcy.org
Family Village
www.familyvillage.wisc.edu
Internet Resources for Special Children
www.irsc.org
Children with Disabilities
www.childrenwithdisabilities.ncjrs.org
Medical
American Academy of Pediatrics
www.aap.org
Child Neurology
www.waisman.wisc.edu/child-neuro/index.html
Child Neurology Society
www.childneurologysociety.org
Dopa Responsive Dystonia Central
www.drdcentral.com
HospitalWeb
http://neuro-www.mgh.harvard.edu/hospitalweb.shtml
National Institute of Health Office of Rare Diseases
www.rarediseases.info.nih.gov/
National Institute of Neurological Disorders and Stroke
www.ninds.nih.gov
National Organization of Rare Diseases
www.rarediseases.org
National Library of Medicine
http://www.nlm.nih.gov/nlmhome/html
Society for the Study of Inborn Errors of Metabolism
www.ssiem.org.uk/
Genetics
American Board of Medical Genetics
www.faseb.org/genetics/
Professional Genetic Societies (Includes International Organizations)
www.kumc.edu/gec/prof/soclist.html
National Society for Genetic Counselors
www.nsgc.org
The Alliance for Genetic Support Groups
www.geneticalliance.org
National Human Genome Research Institute
www.genome.gov
Gene Tests
www.genetests.org
Parenting
Exceptional Parent Magazine
www.eparent.com
National Parent Network on Disabilities
www.npnd.org
Sibling Support Project
www.thearc.org/siblingsupport/
Recreation/Travel
Recreation and Leisure Center, Adaptive toys Family Village
www.familyvillage.wisc.edu/
National Lekotek Center
www.lekotek.org
North American Riding for the Handicapped Association
www.narha.org
Transporting Children with Special Health Care Needs
www.aap.org/policy/RE9852.html
The Air Care Alliance
www.aircareall.org
National Patient Travel Helpline
www.patienttravel.org
Mercy Medical Airlift
www.mercymedical.org
National Make a Wish
www.wish.org
Children Wish Foundation International
www.childrenswish.org
