Helpful Links

The following are links to other organizations that might provide further support and resources. The PND Association assumes no liability for any information contained in any linked site.

Assistive Technology

Abledata National Assistive Technology Database
www.abledata.com

Alliance for Technology Access
www.ataccess.org

Education

Office of Special Ed Programs (OSEP)
www.ed.gov/offices/OSERS/OSEP/index.html

A Guide to the IEP
www.ed.gov/offices/OSERS/OSEP/...

Special Education Resources on the Internet (SERI)
www.seriweb.com

The Special Ed Advocate
www.wrightslaw.com

Band-aides and Blackboards
http://funrsc.fairfield.edu/~jfleitas/contents.html

Financial Entitlements/ Insurance

US Department of Health and Human Services Children's Health Insurance Program
www.insurekidsnow.gov/

SSA Benefits for Children with Disabilities
http://www.ssa.gov/pubs/10026.html

Family Voices
www.familyvoices.org

Medicaid Waivers (Katie Beckett)
www.familyvoices.org/ma-kbw.html

Evaluating Managed Care Plans for children with Special Health Needs: A Purchasers Tool
www.ichp.edu/managed/materials/purchaser/

Obtaining Quality Managed Care for Children with Disabilities or Chronic Illnesses: A Resource and Research Guide
http://mchneighborhood.ichp.edu...

Disability/ Chronic Illness

The National Information Center for Children and Youth with Disabilities
www.nichcy.org

Family Village
www.familyvillage.wisc.edu

Internet Resources for Special Children
www.irsc.org

Children with Disabilities
www.childrenwithdisabilities.ncjrs.org

Medical

American Academy of Pediatrics
www.aap.org

Child Neurology
www.waisman.wisc.edu/child-neuro/index.html

Child Neurology Society
www.childneurologysociety.org

Dopa Responsive Dystonia Central
www.drdcentral.com 

HospitalWeb
http://neuro-www.mgh.harvard.edu/hospitalweb.shtml

Medscape
www.medscape.com

National Institute of Health Office of Rare Diseases
www.rarediseases.info.nih.gov/

National Institute of Neurological Disorders and Stroke
www.ninds.nih.gov

National Organization of Rare Diseases
www.rarediseases.org

National Library of Medicine
http://www.nlm.nih.gov/nlmhome/html

Society for the Study of Inborn Errors of Metabolism
www.ssiem.org.uk/

Genetics

American Board of Medical Genetics
www.faseb.org/genetics/

Professional Genetic Societies (Includes International Organizations)
www.kumc.edu/gec/prof/soclist.html

National Society for Genetic Counselors
www.nsgc.org

The Alliance for Genetic Support Groups
www.geneticalliance.org

National Human Genome Research Institute
www.genome.gov

Gene Tests
www.genetests.org

Parenting

Exceptional Parent Magazine
www.eparent.com

National Parent Network on Disabilities
www.npnd.org

Sibling Support Project
www.thearc.org/siblingsupport/

Recreation/Travel

Recreation and Leisure Center, Adaptive toys Family Village
www.familyvillage.wisc.edu/

National Lekotek Center
www.lekotek.org

North American Riding for the Handicapped Association
www.narha.org

Transporting Children with Special Health Care Needs
www.aap.org/policy/RE9852.html

The Air Care Alliance
www.aircareall.org

National Patient Travel Helpline
www.patienttravel.org

Mercy Medical Airlift
www.mercymedical.org

National Make a Wish
www.wish.org

Children Wish Foundation International
www.childrenswish.org