PND Online Support Groups

he PND online support groups are registered under Yahoo groups and are restricted goups for registered PND family members.  To register click here.

The function of the groups are to provide peer support. Although the groups are overseen by PND members the PND Association is not responsible for its content.  or additional information please email our online support group contact person Darlene Drew.

1. PND General Online Support Group- for parents/professionals . Medical questions that need further input are referred to the PND M&S Advisory board. Overseen by Darlene Drew a parent of a child with TH. To join this group please email Darlene at dmdrew92@roadrunner.com

2. PND Online Group for children and siblings  - for affected children and their siblings. Overseen by Darlene Drew a parent of a child with TH.  To join this group please email Darlene at dmdrew92@roadrunner.com

3. PND Online Medical Equipment Exchange - click on for more information

4. PND Online Palliative Care/ Hospice/ Bereavement Group - available to those families who have either lost a child or are in a place of having to make difficult decisions about the care of their child. Overseen by Jennifer Tiffany whose son Alan passed away from AADC. To join this group please email Jennifer at JTiffany@tds.net