PND Family Registration
  If you are a family affected by a PND or are involved with a child please register as a family member with the PND Association. Registration entitles you to our quarterly newsletter, updates on meetings and conferences, family and professional networking and access to our online family support group.
Parent/Guardian

First Name: 
Last Name: 
Address

City
,
State
Zip Code
Country
Home Phone
Work Phone
E-Mail Address

Affected Children:

First Name: 
Birth Date: 

Names of Siblings:

Brothers 
Sisters 

Health Care Provider

First Name: 
Last Name: 
Hospital, Clinic or University

Address

City
,
State
Zip Code
Country
Work Phone
Fax
E-Mail Address

Diagnosis:

Tyrosine Hydroxylase Deficiency
Aromatic L-Amino Acid Decarboxylase Deficiency
GTP Cyclohydrolase I Deficiency
(Dopa Responsive Dystonia)
Succinic Semialdehyde Dehydrogenase Deficiency(SSADH)
Undiagnosed

Description of child's medical condition, treatment and medication:


Permission Requests

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Would you like to be included in our parent-to-parent network?    
Can we provide your information to medical professionals?    
Can we provide your information to other families?    
Would you be interested in volunteering time to help our organization?