What's New ?
     Family Conference
Education and Awareness

We are pleased to announce the release and distribution of the recent publication by the Annals of Neurology on Pediatric Neurotransmitter Diseases(  First Symposium on Pediatric Neurotransmitter Disease , May 2003) This publication was supported by a NIH NINDS grant and the PND Association and was distributed to 7000 national and international adult and child neurologists.

Annals of Neurology, Official Journal of the American Neurological Association and the Child Neurology Society - Pediatric Neurotransmitter Diseases, Vol 54, Supplement 6 , 2003 , Edited by Darryl C. De Vivo MD, Columbia Presbyterian Medical Center, New York NY, & Michael V. Johnston, MD, Kennedy Krieger Institute , Baltimore, MD. www.interscienc.wiley.com

For copies please email [email protected] . Please notify us if you would like additional copies for educational purposes.


The PND Association attends and supports presentations at national and international conferences to increase awareness among families and the medical community. The following is a list of those conferences the PND Association will be attending and or presenting; 

  • European Federation of Autonomic Societies
  • May 22nd-24th 2003, Toulouse, France Exhibiting Board Member Lisa Flint

  • Child Neurology Society Annual Meeting - Washington DC

    October 1st-4th 2003, Exhibiting Board Members Nancy Speller & Carolyn Hoffman
    Abstract  Presentation-  Phillip L. Pearl MD  & Edward Novotny MD SSADH

  • American Society of Human Genetics

    November 4th- 8th 2003,Los Angelos, CA , Exhibiting Board Members Nancy Speller & Diane Casey, Mailing to all ASHG members on PND's prior to conference

  • First International Symposium on Pediatric Movement Disorders

                  Febuary 20th-21st 2004 , Barcelona Spain , Panel Presentation- Darryl De Vivo MD,                     Georg Hoffman MD, Roser Pons MD, Keith Hyland PhD, K. Michael Gibson PhD      


New Members of Board of Directors and Medical & Scientific Advisory Board

The growth of the PND Association has necessitated the expansion of our boards to include international representation and other areas of expertise. We welcome the following new members to the PND Board of Directors and M&S   Advisory Board;

Board of Directors; Bruce and Kelly Heger, Darlene & Kyler Drew, Diane & Michael Casey and Lisa & Tony Flint

Medical & Scientific Advisory Board; Nenad Blau PhD , Switzerland, Blair Ford MD, New York, Roser Pons MD New York, Clive Svendsen PhD, Wisconsin, Masaya Segawa MD, Japan, Georg Hoffmann MD, Germany, Cornelis Jakobs, The Netherlands




The PND Association is a non-profit, voluntary organization. We are always in need of volunteers and new fundraising opportunities. If you are interested in lending your support please email [email protected].

Click here for upcoming events..

2003 Pediatric Neurotransmitter Disease Association