PND Online Support Groups

The PND online email support groups are registered under Yahoo groups and are restricted groups for registered family members of the PND Association.   Family registery. The function of the groups are  to provide peer support.  Although the groups are overseen by PND members the PND Association is not responsible for its content.

1) PND General Online Support Group - for parents/professionals involved with the care of a child who has a PND or other neurological condition. Medical questions that need further input are referred to the PND M&S Advisory board. Overseen by Darlene Drew a parent of a child with TH. To join this group please email Darlene at [email protected]

2) PND Online Palliative Care/ Hospice/ Bereavement Group - available to those families who have either lost a child or are in a place of having to make difficult   decisions about the care of their child. Overseen by Jennifer Tiffany whose son Alan passed away from AADC.  To join this group please email Jennifer at [email protected]