"THE MEDICAL MANAGEMENT  OF PEDIATRIC NEUROTRANSMITTER DISEASES: A MULTIDISCIPLINARY APPROACH"

  The proceedings have been published in the Journal of Inherited Metabolic Disease     Volume 32 No 3 June 2009
 
PND ASSOCIATION ANNOUNCES $200,000 RESEARCH GRANT PROGRAM

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Calendar

                          
First Annual Symposium on Pediatric Neurotransmitter
Diseases May 18 to 19, 2002 Annals of Neurology Vol 54 Supplement 6 2003 For a free copy of the Journal
email: 
[email protected]

 

1st Annual Liam's Links
Charity Golf Outing
May 3rd, 2010
Richmond, Virginia 

Raised $20,000


As parents we all have dreams for our children but there is probably one we all share in common — for each of their lives to be filled with happiness. That is where our story begins.

Five years ago, we were blessed with the birth of our first child, Liam. With a head full of curly brown hair, beautiful blue eyes, and a contagious smile, he is truly the joy of our lives. At 6 months of age, Liam was diagnosed with a rare genetic pediatric neurotransmitter disease, SSADH (Succinic Semialdehyde Dehydrogenase) deficiency, that affects one’s ability to walk, eat, speak, and communicate.

Liam has enriched our lives and led us to people in this world whom we never would have met and to places that we never would have seen. We are inspired by Liam’s life and believe he has a special purpose — to be the “link” for doctors and researchers to find ways to improve the quality of life for kids like Liam and to ultimately find a cure.

On May 3, 2010, the Liam’s Links inaugural golf tournament will begin our family’s mission to raise awareness of SSADH and to help fund research for neurotransmitter diseases. On behalf of Liam and the children and families affected by this disease, please join us on the links and help become a catalyst of hope for their future.

Many thanks in advance for your support.

Sincerely,

Jay and Diana Strickland
 

Please click on the link below for more information on Liam's Links

Liam's Links
Hope for tomorrow begins today...